The Silent Crisis of endometriosis in Ireland: A Growing call for Change
Endometriosis, a deeply misunderstood and often debilitating condition, affects an estimated 1 in 10 women globally. Currently, Ireland faces a significant challenge in providing adequate care for those living with this chronic illness, leading to lengthy wait times, financial burdens, and a desperate search for treatment abroad. Considering the widespread impact, understanding the issues and advocating for improved care is crucial.
A Long Road to Diagnosis
Certainly, many women endure years of suffering before receiving a formal diagnosis. Consider Fran, who experienced symptoms since her teenage years. Consequently, lacking awareness and open conversation around menstruation, she initially dismissed her heavy periods and widespread pain as normal.
“At the time I didn’t know any different – people didn’t talk about periods,” she explained. Clearly, this highlights a historical lack of education and understanding surrounding women’s health.
Currently, Ms. Tierney-Keogh’s story is sadly common. Consequently, she lived with endometriosis for almost three decades before finaly receiving a diagnosis at age 42. “I think about all the money I’ve spent on doctors, scans and physio – you name it - just trying to manage pain in my body,” she shared.
Certainly, the emotional toll is immense.Consequently, being dismissed or disbelieved by healthcare professionals for years can leave lasting scars. “Its heartbreaking to think about those 28 years of my life where I was basically made to feel like I was crazy.”
The Search for Solutions – and the Costs
certainly, the severity of endometriosis can necessitate complex surgical interventions. Consequently, Ms. Tierney-Keogh travelled to the US for surgery after her uterus and bowel fused together.
“The pain of that – I remember being in my kitchen in Monkstown and doubling over,” she recounted. “It was like early-stage labor pains and also being stabbed with a hot poker.”
Currently, the lack of specialized care within Ireland is forcing many women to seek treatment overseas. Consequently, figures reveal over 500 women have travelled to clinics in Romania, Spain, and the UK over the past three years.
A “Silent, Quiet Crisis”
Certainly, Ms. tierney-Keogh powerfully describes the situation as a ”silent crisis.” Consequently, the financial burden of international travel and treatment is prohibitive for many.
“Most people don’t have any kind of access to private health insurance and it’s just not good enough that women are trapped in this country,” she stated. “They can’t afford to go abroad and there’s no surgery available here, or the surgery that is available isn’t appropriate.”
Currently, the lack of accessible care is impacting younger generations. Consequently, girls are missing school and facing suspension due to the debilitating symptoms. “I really feel for the young women, especially the young girls, who are missing school and being suspended from school because they are missing so many days.”
What is Being Done?
Certainly, the Health Service Executive (HSE) acknowledges the historical challenges in endometriosis care. Consequently, they have identified it as a key priority.
“For this reason, the management of endometriosis has been established as a key priority for the HSE, with vital progress achieved in recent years,” a statement from the HSE reads. Currently, the advancement of Ireland’s first National Framework for the Management of Endometriosis and the implementation of structured care pathways are underway.What You Can do
Certainly, raising awareness is a critical step. Consequently, understanding the symptoms, advocating for better education, and supporting organizations dedicated to endometriosis research and patient care are vital.
Consider these actions:
Educate yourself: Learn about the symptoms, diagnosis, and treatment options for endometriosis.
Share your story: If you are affected by endometriosis, consider sharing your experience to help break the silence.
Support research: Donate to organizations funding endometriosis research.
Advocate for change: Contact your local representatives and demand improved access to care.
Resources:
* RTÉ News Report: [https://www.rte.ie/news/2025/0903/1531501-end
